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1. 16 Aug 2009 09:10 | ||
We all have hopes, dreams & desires that move us... Show them to me... Open your hearts & souls... I will give no examples as to what this might be... Whatever this means to you, draw it... |
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2. 16 Aug 2009 10:48 | ||
Having 2 kids with Cystic Fibrosis it is my dream that a cure if found. |
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3. 16 Aug 2009 10:49 | ||
Sorry I forgot to add that this is a "play" animation. |
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4. 16 Aug 2009 19:34 | ||
Don't let Doug win by default... Surely y'all have hopes & dreams... |
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5. 17 Aug 2009 02:39 | ||
6. 17 Aug 2009 05:45 | ||
Ok,guys. My computer hates me today,can't get my picture up here. |
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7. 17 Aug 2009 05:46 | ||
Ok,sorry,never mind. looks like I got it! |
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8. 17 Aug 2009 11:17 | ||
Matthew asked me to give a little info on CF. It is a genetic disorder wherer both parents must carry the recessive gene and then there is a one in four chance that any child you have would have CF. Cystic Fibrosis affects the way water is passed thru each cell in the body. It does not affect the brain or heart, but primarily causes problems with the lungs and pancreas, and reproductive organs. It creates a thick sticky mucus because of the "reduced fluid" issue and therefore causes the lungs to fill up with thick sticky muscus which causes lung infections. With each lung infection, there is scar tissue, and as time passes it kills you. The kids have to take enzymes to break down the fat/vitamins, etc in their food because their pancreases are shut off so they are semi skinny. (more) |
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9. 17 Aug 2009 11:24 | ||
If you looked at them both, you would never know. They have a daily regimen of pills, breathing treatments, etc. Their life expectancy is around 30. A lot of research is happening and a lot of the medicines they take will prolong their lives, but unless a cure is found, plain and simple they will die. Maybe thats why I draw a lot of dark stuff (monster man). The little one Alex spent 4 months in the ICU the day after he was born. He had a |
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10. 17 Aug 2009 12:18 | ||
Saved this before it was really finished, but I have been losing my internet connection all day. |
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11. 17 Aug 2009 12:18 | ||
-on + of |
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12. 17 Aug 2009 12:38 | ||
Doug~ Thank-you for an easily understandable, explanation of CF. I am your children are a wonderful blessing to you! May research keep progressing at a rapid rate! |
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13. 17 Aug 2009 12:39 | ||
That should read 'I am sure your children are.... |
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14. 17 Aug 2009 13:20 | ||
Thanks. |
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15. 17 Aug 2009 13:32 | ||
Thank you doug... Education is important... Sharing your burdens is also important... I am glad you did both... |
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16. 17 Aug 2009 13:39 | ||
Doug, my heart goes out to you. I don't know what else to say. We all have difficult things, it seems. Me too. Draw, do draw, draw some more and find pleasure in it. |
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17. 17 Aug 2009 14:04 | ||
Thanks for the explanation Doug ... now I understand those dark drawings. |
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18. 17 Aug 2009 14:34 | ||
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19. 17 Aug 2009 14:57 | ||
20. 17 Aug 2009 17:26 | ||
Solosater: Its all genetics. The luck of the draw. The recessive gene is passed down from generation to generation thru the mother or father until you get a couple with the same recessive gene then wham. I could go into the genetic codes, etc., but that would get too involved. The worst part was that we had no clue with Patch. We got a call from the PKU test they do on newborns after he was two weeks old and said get to the hospital, your son has CF. After 6 years of dealing with the disease we thought we had a handle on it and would be able to cope with another CF kid if we got that 25% chance again. But wham Alex took it another way and had the bowel blockage. Enough said. There is a world of info on the CFF website and here in Pittsburgh we have the leading doctor in the world for CF. He wrote the books and goes around the world teaching other doctors how to treat it. |